Monday, December 30, 2013

"Which team are you on?"

   Four years.  Tonight the balloon lady at a popular "kids eat free" night asked Etienne how long he had been home.  I hate answering that question.  It's so long.  It's as long as the Olympics cycle, it's a presidential term.  It's a lifetime.  And it's such a horrible answer to how long my son has been home.
     Four years should be long enough, right?  Surely, the majority of this kid's memories are of his parents loving on him.  He can't readily spit out kinyarwandan and he no longer hugs strangers.  So things are cool than?  Hardly.
     I reexamined vigilant last post.  The other battle that we've seen more than ever is argumentative, blatant "You are wrong and I'm not" behavior.  Lemme explain.  At lunch time I gave everyone a choice of soup or a sandwich.  Etienne requested a cold sandwich.  I let him help make it.  Cold cuts, cheese, chilled mayo (d'uh).  I set it in front of him.  He touched it.  Then he said, "That's not really cold. I'll have soup."   Or when he snapped all of his brother's glow-in-the-dark necklaces, then screamed "I DID NOT BREAK IT. I SNAPPED IT."  Then there was the "I didn't punch Zeke, I smacked him."  Etc, etc.  All. Day. Long.
     I guess I am complaining.  I know, I know.  He's not breaking furniture or putting holes in drywall. ("Kara, he's so much better then he was a year ago").  A year ago, he never screamed at me.  A year ago he did not find every little fight, argument or literal interpretation of my words.  A year ago, I didn't have this little fear sneaking in that one day he will get too mad at me.
     Tonight we hit a breaking point.  I know that the lack of strict routine during holiday break is difficult for most families ("It's beginning to look a lot like Christmas....and mom and dad can hardly wait for school to start again..."). My son had decided to get himself out of the tub without washing and pushed me away as I tried to turn him back again.  I reminded him that I needed to see him scrub himself.  He argued that he could do it himself and he already did (he hadn't).  It escalated from there.  He screamed and pushed me.  A lot.  He's really strong.  I lifted him back into the tub to just scrub the stinky parts, then let him scream.  I had to close the door and leave.  As my wise hubby says, to not engage him.  Later, I returned and I tried to remind him that it's harder to make good choices when we are tired.  More screaming that he's not tired.  More pushing me.  So I left him.  I told him if he wasn't tired, tonight I wouldn't make him go to bed.
     It's the least attached parenting choice I could have made.  I know it.  My other kids needed me to read and snuggle and pray with them.  So we did our thing and he did his own thing in his room.  Later, I snuck in and I could hear him praying "I don't want to be on sin's team."  As I type that, I cry all over again.  I went to my son and I laid my head on his chest and I sobbed.  He cried too (this is really, really good).  He didn't apologize.  That's okay.  I told him I was afraid when he got angry, that he is stronger than me.  I told him that no matter how mad he gets, no matter how big and strong he is, I won't stop chasing him.  I can't stop chasing his heart.  I told him that even if he never, ever trusts me in my lifetime, God has bound us to one another.  We prayed together for a long time.  I asked him if next time, when we started to fight, if we should have a code word.  He suggested asking him which team is he on? when he is yelling.  So that is our plan for now.
     I am not here to complain.  I am here to share for the other parents out there.  It has been four years.  Four years feels like a lifetime and only a moment.  Click here to a read a professional's explanation of RAD; because sometimes we have beautiful, healthy days.  And sometimes we have ugly, long long weeks.
      I am not looking for pity or a casserole.  I just want to explain this healing, it's a long road.  There is a song, originally by John Mark McMillan, that has become me and E's lifesong:

He is jealous for me, loves like a hurricane, I am a tree
Bending beneath the weight of His wind and mercy
When all of a sudden I am unaware of these afflictions
Eclipsed by glory and I realize just how beautiful You are
And how great Your affections are for me

And oh, how He loves us, oh



Oh, how He loves us, how He loves us



 
     So tonight I am laying next to E on his floor.  I've read some verses of Isaiah to him, our own little tradition in these four years.  And I think of all the mamas in the bible.  Hannah.  Sarah.  Women that waited and waited and waited on the Lord for their child.  I thought that I had quit waiting for my E to be mine four years ago, when I first held him in my arms.

Monday, December 16, 2013

Vigilance

VIG-I-LANT: alertly watchful especially to avoid danger

VIG-I-LANCE: 1. the act, state or quality of     being vigilant

            2. the abnormal state or condition of being unable to sleep 


I've been wanting to share about vigilance for a long time now.  It's the perfect word to describe my E; the way he carries himself throughout the day, how he appears when he with a group or even his family, and absolutely how he looks when he is "sleeping" at night.
We've been especially vigilant lately because we've had a birthday, Thanksgiving and now the holiday season.  The fun Christmas activities, changes in routine and even sounds, smells and sights send lots of little ones into an oblivion.  For my E, all the "fun" equates to lousy RAD behavior, lack of sleep, and crazy uncoordinated large motor skills (he fell down a flight of stairs TWICE Saturday, he fell UP THE STAIRS yesterday. Thank God he is made of rubber.).  
Hearing the word vigilant, I used to envision a poor teenage babysitter, late at night, getting prank calls and being hypersensitive to the creaks and moans of the house.  Or maybe the gal walking alone through an abandoned parking lot.  Then, about 2 years into living with it, I began to recognize that my son is  vigilant.  Sometimes it is to what everyone else in the room is putting in their mouth.  Other days, he's vigilant to every sentence that Ryan and I pass between us ("Mom! Wait! Did you just say that there will be whale at Sunday school tomorrow?").  It's super annoying and sad for us but for our boy, it has got to make him exhausted in general.  Think about how you feel at the end of a suspenseful movie.  The story has resolved and you naturally relax your muscles and exhale.  And feel pretty tired, right?  
The part that gets me is that my E is a kid.  He's never seen a horror movie.  He's never left alone and no one has left him out of anything in four years.  Yet still.  Before my E came home, he had the experiences and visceral emotions to shape him to be alert.  On standby.  Ready for fight or flight.  All the time.  Yuck.  How can that not break my heart?  
It's just a word, not a label.  A window into his actions, if you will.  So when you see my son in the coming days, give him some grace.  He's asking what you just drank because he wants a drink too.  If you hear him interrupting and pushing his way in, he doesn't want you to forget him.  When you see him rubbing his eyes with his fists and falling down all over the place, don't forget that last night he hit his head on the wall , wet the bed, then awoke before the sun.  
I am trying to remind myself of this too.  When I want to hit him for dumping water on Molly's friends or sneaking into the bathroom when I'm peeing, I will phone a friend for prayer.  This isn't his fault despite how long it has been.  As much as we tell him over and over and over again that he is home.  He has a family.  Forever.  There aren't words to reason away fear of being hurt, both physically and emotionally.  You can't rationalize with someone that has been wounded.  That's that whole "actions speak louder than words" thing.  
So I tried something new last night when I was tucking him in.  I made him repeat after me.
"My mommy and daddy love me."  Repeat. As he said the words, I squeezed him tight and prayed that God would deliver him now.
"No matter what I do, my family won't ever leave me." Repeat, kisses, hugs, pray. Repeat. 
"I'm not an orphan. I am a child of the one true King."  Repeat, hug, squeeze, pray. 

Tuesday, December 3, 2013

We're not that into the Elf...

     Reader warning:  No judgement, promise? Do not take offense to the following true story.  If your kids are into this new tradition, I am super excited for you.  We are not.
     Sometimes I feel like I am on the Truman Show or that at any minute a TV crew will pop up from behind my couch and yell "Gotcha!"  Our day to day life reminds me that God clearly has a sense of humor.  If I take a step back, I can laugh at the absurdity too.  This is follow up to several recent discussions regarding the Elf on a Shelf business.
     This morning, over smoothies and peanut butter toast, goes something like this.  Zeke says (in his Barry White kinda voice).
"Mom.  Most of the time we aren't really really good.  And we don't have an Elf like the kids at school.  So I don't think that Elf really works or he would totally be here.  He is really scary mostly.  Like he wants to hurt me."  (He stole that line from the movie Elf)
     Everyone then agrees that the Elf on a Shelf is scary and Molly tells the boys that the Elf wasn't around when she "was a kid."  I made them promise not to ruin the Elf thing for all the kids that they know and they also had to promise on their remaining Halloween candy that they would not tell other kids that the Elf wants to hurt them.  Blake decided that ultimately it would cause many kids to have new nightmares and we "do not want to be the cause of scary toy dreams."  By the time we left for school, the Elf we were discussing had taken on more of a Chucky-meets-Babes in Toyland role.  Yikes.
    It gets better.  My kid, the one that just tried to walk naked out in the hallway while the neighbor girls were here, then proceeded to attempt sneaking his to football helmet to school, says
"Aren't we supposed to be good because it makes God happy anyway?"
     Oh. My. Heart.  Sometimes he is listening to me!  Holy awesome.  My same kid that says he will be a preacher (Step 1: Do not get kicked out of Sunday school) just gets the Big Stuff.  And that's really all that matters in the end.  I am ever grateful for these glimpses of glory and the humor that gets laced into it.
PS I swear that I have never, ever shared that I am convinced that the Elf is a serial killer.  Obviously, my kids are brilliant.
     
 
 
 

Tuesday, November 19, 2013

Breaking the Sleep Cycle

  I've written a lot over the years regarding our struggles with sleep (or rather a lack thereof).  As I have learned more about my son and the rewiring of his thinking, feelings and even senses, I totally get why he does not sleep well.  Who would, really, when they have such extreme conditions early in life?  Of course he still processes old memories, old feelings and old fears at night.  Of course he needs grace in this.
That being said. UGH! Finding that grace for him in the last hours of the day is difficult for all of us.  Our cycle here is that E wakes up early.  Really early for a kid who goes, goes, goes without a nap or even a pause all day long.  Usually, E is up 2 hours before the rest of the kids.  Some days (note, I didn't use words like many or most!) he will lie in his bed humming softly or talking to himself.  Usually he wonders to the bathroom at least two times.  By the time the rest of the entourage wakes up, this kid is WIRED and ready to go.  It's best for all of us if he gets dressed, brushes his teeth, etc, in my bathroom.  His nonstop chatter, chanting, touching and stomping is a lot so bright and early.
  By the time 4 o'clock rolls around, E is done.  Finished.  Ready for bed.  I would be too if I ran- not walked-everywhere, was hypervigilant to everyone around me and generally was on fast forward mode.  That's where our strict routine comes in with the high protein, the sprints, yada, yada, yada.  Basically we hang on until bedtime.
Now usually I avoid asking for advice.  Please don't take this the wrong way.  It just stems from the fact that parenting E is never going to fit the mold for most kids.  I've been hurt a lot over the years by this.  I value all your opinions and thoughts but I have also come to guard my heart in this area.
E is chronically sleep deprived.  We can see and hear his fatigue.  I don't know how to break this cycle.....I would guess that he gets about 9 hours of sleep.  This is the kind of sleep that involves crashing into the wall, hanging off the bed, tossing and turning, keeping muscles flexed, peeing.  Not that sound or restful.
Thoughts? Suggestions?  I'm bracing myself but I'm ready for my community here.

Thursday, October 31, 2013

This is so good!

  My E has been back to some sleepless, wet nights.  He's coming home at the end of the day just worn.  I know that it takes every fiber of him to behave, to try to learn, to not do so many things that he's constantly tempted to do.  He is tired from trying so hard and it doesn't help that he isn't sleeping well.  Remember when you had a baby and between late afternoon and bedtime, it's witching hour? Too late for a nap but too early for bedtime? Yah, that's us.
  So we do our strict schedule and it helps.  Mostly, I really believe that God has softened my heart to him in many ways.  I just don't care anymore about a lot of stuff.  Ryan will roll his eyes at me because by 8 o'clock every night, E and I are arguing back and forth.  We both have to "have the last word."  I know my dad is laughing at this right now; this was always the reason I was grounded as a kid.  He gets that from me.
  Today was different.  Today, E came home, did his snack and his exercise and then-wait for it-he went and got his "sight words" and began writing.  It's Halloween, people!  Candy and lack of structure and routine!!  He asked me to help him write his sight words in 10 sentences.  There was no crying.  No quitting.  No whining or pretending to go to sleep.  No thumb sucking.  When he messed up, he crossed it out and started over again.  It was awesome.

  That is what we like to call evidence of God's grace.  

  I had been pretty frustrated.  We have a lot of stuff (mostly really good, see here) going on.  We have a dead beat renter squatter that owes us over a year's rent to our KS house.  I was bummed about that terrible mess.  At work, we've had an "intruder" (think guy with a automatic weapon roaming the halls of a clinic), super young teen moms, mentally ill patients.  Just ugly stuff that weighs on me.
  And then, BOOM.  God shows up again.  At my kitchen table in the form of sight words.  Reminding me of what He is doing in my son.  And in an orphanage in Kigali.  In the homes of 55 (!) families that are matched with kids.  What a blessed, insanely dramatic life we have here.

Tuesday, October 15, 2013

The NEED to talk

This has  been a  season of so much redemption  in our home.  In our Etienne.  In my heart. Letting  go  of all our ideas  of  what "normal"  really  looks  like. Embracing dysfunction. Living  with  two  little boys  that  started  their  lives  in an overcrowded  orphanage  is never  going  to  look  like a Disney movie.  Remember  those  after  school  specials  in  the 80s?  Like  that.  Only maybe  without  a quick resolution followed and a PSA.
So I  thought I had  truly  let  go  off  all  my grief  and ugliness. I  said I  didn't  care  that my house  is a bit damaged,  that  we  don't  all  sleep well,  that  it's  hard  to  find a  sitter  on Saturday  night.  And  most  of  the  time,  this  is  totally true.  Totally.
Except  there's  this  thing about behaving  at  school.  We've  been  saying  that  we  don't  care  if our kids  aren't  the  best readers  or mathematicians  but  we  do  care  that  they  are  all respectful  to  everyone;  that  they  are showing God's  love  in  their  actions.  To  me,  it  seems fairly straightforward  that  if a  grown  up  says "be  quiet!"  you  do  it. And  when  you obey,  you  show God’s  love  to  your  teacher.
E's  poor  teacher  has  begun  using  this  website  called "dojo"  to mark  his  daily behavior.   We  just  log  in  every  night  and -voila!-  there  is a  cute monster  with a behavior pie  chart  thingy. My kid can not, CAN NOT, not  talk. Don't  get  me  wrong,  it's  light  years better  than the regular  visits  to  the principal.  But  he's  still failing miserably  at getting  through  the  day  in the  classroom.
Today's talking  was  off the  chart lousy.   I'm  trying  to  rationalize   with  him as  we  do our strict  after  school routine (high protein snack,  laps around  the house, help mommy in the kitchen).  Even  as I  talk, I  know  it's pointless.  Finally, I sighed  and  asked  him why  it was  so  hard  not  to  talk.  I  swear  this  is  what  he said:
"I need  to  tell my  table  that Jesus suffered because He  loves  them  so  much.  I need to  tell  them  that."
Oh. I  feel  like God  just  took  me  and  shook  me  upside  down.  Like He is shouting "Hello, Kara,  this  life  is  so  much  bigger  than talking  in  class.  This  boy's  worth  is  why I died."
Holy  awesome.  How  do  we discipline a  child  who  is desperate  to  share  the gospel?  So desperate,  in  fact,  that  he's choosing  to sacrifice a  trip  to Pizza Machine ( we  are not above bribes)  because he NEEDS  to  tell others  the Good News.
I am  not  sure  how  to navigate  this  one.  But I  am beyond humbled to be trying  to figure it out.


Tuesday, October 8, 2013

"WAY TO GO!"

This is a first!
     Friday Etienne got his first ever "Way to go!"  These are awarded by the teacher for either being respectful, responsible, safe or caring.  This was kind of a big deal (for obvious reasons).  Then, on the way home, he chucked it out the window.  Typical irony of our life.  We love small victories and funny stories.
     We had parent/teacher conferences tonight.  Cheering that we haven't had calls from the Principal this year.  Thankful that no parents have complained or threatened us (not exaggerating, true stories).  Bummed that E's poor teacher has to discuss a lot behavior drama with us.  Bummed that school is not his thing.  He is getting English Language Learning (ELL) again; she says that she can definitely identify some language barriers.  Still.  Etienne is also getting some supplemental reading.  These are services that I never would have imagined I would be so appreciative or rely upon.  They are essential for my son to learn.
     Rejoicing that she said "Some of the things he says amaze me.  There are times that he comprehends things beyond years.  It's like he's an old soul."  This brought tears to my eyes.  The only prayer that I have ever had for Etienne in public school was that people could see the real him; that his behaviors wouldn't hinder relationships or learning.  Ultimately, his classmates and the staff around him can see his loving heart and caring ways.
     I spent this morning in worship alone.  Reading scripture and listening to music.  Reflecting on how far God has brought our family and my heart.  I can't believe that the softness in my son's eyes, the way he leans into me when I am near him, or how in the past week alone we have been "lunch buddies" (packing the same lunch) and "work buddies," (doing home repair together!).  This is so much evidence of God's grace in our home, in E's healing and my heart.
     Etienne is back to having a difficult time sleeping at night.  This makes learning, behaving and functioning all day long a lot harder for our man.  We have totally compensated over the years as to how much rest we need, but our prayer for E is that he may rest well each night so that behaving and learning is a little easier during the day.